A Response to sincere 'Comment' by Binuelos:
The comment contained several concerned inquiries
about Daniel and the frustration of not seeing new
updates. Like Binuelos, many who check the blog
everyday, experience dismay and apprehension with
the lack of news. Two weeks without an update
certainly has a way of eroding hopes.
It is our responsibility to support the many who,
because of time and distance, see the blog as their
only contact with Daniel and his family.
Daniel's condition has not regressed in that he has
not experienced the recurring fevers, his weight has
stabilized, the Baclofen pump is functioning properly.
However, his progress with speech therapy and
associated indicators has not displayed any
significant change. Swallowing and possibly using
vocal chords has not been successful as yet.
Daniel is still at Village Square/Kindred in San
Marcos. Cathy, Margarita, and other family members
are very satisfied with the care and treatment offered
by this facility. They have been advised by Daniel's
insurance company that they are evaluating his
condition and need for the level of care offered by
Village Square/Kindred. They will determine if he
will remain here or will be moved, the decision may
come as early as November 14, 2009.
Take care of one another.....
Sal
Saturday, November 7, 2009
Monday, October 26, 2009
International wireless communication and
satellite Internet technologies make this post
possible. Daniel's mother Margarita is there
at Kindred in San Marcos, cellular phone in
hand, and I am south of a fishing port on the
shore of the Gulf of California in Baja California,
Mexico. I post this message with the help of
solar panels and batteries powering my laptop
and transmitting it to a tiny satellite up there
somewhere in the backdrop of our galaxy and
the universe.
Margarita reports that the Baclofen is giving
Daniel respite from the posturing, he is definite-
ly more relaxed, rested, and this has facilitated
more progress with physical therapy. He is able to
sit for longer periods. This has enabled family and
friends to take him out to the patio more often for
fresh air and natural light. Daniel's brother, Victor,
assesses Daniel's strength and takes him for
extended tours of the hospital grounds outdoors
on Sundays.
Changes that were made to his nutritional diet
resulted in a one pound weight gain. Small but
significant incremental steps. Once he is able to
swallow puree he will definitely put on more
pounds. The physical therapy will keep him flexible
and prevent atrophy.
As most of you know, Daniel has been a strong
supporter of Barack Obama. Margarita had the
television news on when a sound bite of Pres. Obama
making some remarks seemed to catch Daniel's ear.
It appeared that Daniel did a 'double take' to catch
a glimpse of the image of Obama on the screen!
There are thousands of 'blogs' on the Internet dealing
with every imaginable topic under the sun. Recently I
have been reading blogs posted by families of patients
with brain trauma injuries. They are very informative
and consoling in that these families have traveled this
same journey and want to share their experiences of
fear, anguish, adaptation & adjustment, hope and faith.
Each and every family shared stories of dealing with
mindless insurance companies and the inhumanity of
their profit driven policies. Families are forced to move
loved ones from one facility to another at the dictate of
insurance company claims adjustors. An all too real
story of frustration and seemingly endless battles putting
families under more duress in stressful times.
Many of their loved ones were at various stages of coma
or in their second, third, or fourth year of rehabilitation.
Almost all have shared that the first prognosis given by
neurosurgeons was bleak and without hope.
Understandably, doctors are faced with many
unpredictable factors and avoid giving loved ones false
hopes. Those families took the dire prognosis with
mixed emotions and set out in heroic ways to intervene
and give their loved one a fighting chance to return to
some degree of normality.
There is one recurring theme or stream of advice that I
found in all these blogs, the urgent message from
families and the victims of brain trauma:
'Don't give up!', 'Don't quit!'
It has taken some of the patients a year or two or
more to regain consciousness, it has taken another
year or more to regain speech, it has taken a year or
more to learn to walk, .....all those attributes that we
take for granted loom as multiple marathons for
patient and family alike. One young male patient
relates that over the arduous span of three years
many of his friendships fell by the wayside. This
journey has taken it's toll on everyone, but we shall
continue to stand by Daniel.
Take care of one another..... value health.
Sal
satellite Internet technologies make this post
possible. Daniel's mother Margarita is there
at Kindred in San Marcos, cellular phone in
hand, and I am south of a fishing port on the
shore of the Gulf of California in Baja California,
Mexico. I post this message with the help of
solar panels and batteries powering my laptop
and transmitting it to a tiny satellite up there
somewhere in the backdrop of our galaxy and
the universe.
Margarita reports that the Baclofen is giving
Daniel respite from the posturing, he is definite-
ly more relaxed, rested, and this has facilitated
more progress with physical therapy. He is able to
sit for longer periods. This has enabled family and
friends to take him out to the patio more often for
fresh air and natural light. Daniel's brother, Victor,
assesses Daniel's strength and takes him for
extended tours of the hospital grounds outdoors
on Sundays.
Changes that were made to his nutritional diet
resulted in a one pound weight gain. Small but
significant incremental steps. Once he is able to
swallow puree he will definitely put on more
pounds. The physical therapy will keep him flexible
and prevent atrophy.
As most of you know, Daniel has been a strong
supporter of Barack Obama. Margarita had the
television news on when a sound bite of Pres. Obama
making some remarks seemed to catch Daniel's ear.
It appeared that Daniel did a 'double take' to catch
a glimpse of the image of Obama on the screen!
There are thousands of 'blogs' on the Internet dealing
with every imaginable topic under the sun. Recently I
have been reading blogs posted by families of patients
with brain trauma injuries. They are very informative
and consoling in that these families have traveled this
same journey and want to share their experiences of
fear, anguish, adaptation & adjustment, hope and faith.
Each and every family shared stories of dealing with
mindless insurance companies and the inhumanity of
their profit driven policies. Families are forced to move
loved ones from one facility to another at the dictate of
insurance company claims adjustors. An all too real
story of frustration and seemingly endless battles putting
families under more duress in stressful times.
Many of their loved ones were at various stages of coma
or in their second, third, or fourth year of rehabilitation.
Almost all have shared that the first prognosis given by
neurosurgeons was bleak and without hope.
Understandably, doctors are faced with many
unpredictable factors and avoid giving loved ones false
hopes. Those families took the dire prognosis with
mixed emotions and set out in heroic ways to intervene
and give their loved one a fighting chance to return to
some degree of normality.
There is one recurring theme or stream of advice that I
found in all these blogs, the urgent message from
families and the victims of brain trauma:
'Don't give up!', 'Don't quit!'
It has taken some of the patients a year or two or
more to regain consciousness, it has taken another
year or more to regain speech, it has taken a year or
more to learn to walk, .....all those attributes that we
take for granted loom as multiple marathons for
patient and family alike. One young male patient
relates that over the arduous span of three years
many of his friendships fell by the wayside. This
journey has taken it's toll on everyone, but we shall
continue to stand by Daniel.
Take care of one another..... value health.
Sal
Subscribe to:
Posts (Atom)