#4. Be as patient with me the twentieth time you teach me something as you were the first.
I visited Daniel last on Monday night and stayed pretty late. He's on antibiotics for a bacteria found around his trach-tube. It is not uncommon for the area around a trach tube to get infected and it is nothing serious. The other cultures from blood and (uh hum) urine samples were negative which means Daniel is healthy on the inside. And the MRSA he brought with him from Sharp is also gone.
I excercised him--range of motion with his arms trying to rotate his shoulders and get him to extend his arms to loosen his elbow joints. The charts are useful for the proper technique and getting a better stretch out of him.
I also turned his head left and right gently and with "permission" from Daniel. The motion must have triggered something because he began to do it on his own. I explained to him that he was turning his head. I then asked him to lift his head and gently helped him do this. To my amazement, Daniel lifted his head higher than a 45 degree angle as though he were attempting to sit upright. He did this unassisted and held it for a good 20 seconds!
I spoke with Daniel trying to take advantage of his alertness. However, I may have overdone it. Patients of stroke have reported that talking actually drains their energy, the life force they need to heal. So how much is enough or too much? I don't have an answer for this but since Daniel is unable to tell us on his own what he needs we must be sensitive and not indulge ourselves in excessive talking. As a rule visitations should be brief.
Today I am excited because I am off to view the Bodies exhibit at Balboa with my kids and nephews: Olivia, Danielito and Nayeli included. We have so much to learn.