Sunday, February 27, 2011

Daniel Update

Hi All and thank you for you patience with our blog. Our love for Daniel is never on hold. Just came from a quick visit with my brother and I am happy to say that he is doing well in his abode in SM. Cathy and Michelle take awesome care of him; he looks happy and healthy whenever I go over. Also, the kids are doing great. I love watching Danielito and Adan play like the little bros that they are. Nayeli and Anahi get along just as well. They are growing up fast. Daniel and I discuss everything: movies, sports, music you name it. I recently saw a documentary on Ricky Williams, maybe you remember him. He was the Miami Dolphins running back that walked away from millions to find himself (suspended for using marijuana). After all kinds of soul searching he eventually became a yogi and returned to kick butt in the NFL. He's also a loving father and the story has a happy ending. The documentary is called Run Ricky Run and I highly reccommend it for its compassionate and divergent point of view. Daniel too is doing great as a dad with the kids giving him lots of hugs. Daniel is very sincere in his gratitude for the caring that is shown to him. I am grateful, myself, for the time that we share together. I hope this update reaches all of you in good health and that it helps by way of connecting with Daniel. Stay in touch.

Wednesday, October 13, 2010

Daniel at Home

Daniel has been home for the past couple of months. Cathy and Michelle are looking after him and the the kids too. They use a lift to help him get around. Daniel continues to make progress; his grip seems to be getting stronger. We "arm wrestled" and he won. Lots of laughs and Daniel still has a great sense of humor. Thanks for checking in.

Monday, July 19, 2010

Happy Birthday Daniel!

Greetings Friends and Family:

Daniel celebrated his 36th Birthday on Sunday, July 18th. He spent the day amongst family at Village Square with the typical carne asada and all the fixings. He was able to enjoy the food as well. Daniel continues to progress and is doing well. Thanks to everyone who contributed to his birthday party and making it a special day for him.

Take care,

Irene

Thursday, July 1, 2010

Daniel at Home

Daniel has been going home twice a week, every Tuesday and Thursday. He is very relaxed at home with the kids. He is still at Village Square in San Marcos the rest of the week where he continues to get excellent care.

Take Care,
Victor

Monday, May 17, 2010

"I want steak"


"I want steak" were Daniel's words, when I asked what it was he wanted to eat when he could do so autonomously. To this, I answered that if it's steak he wants, then he shall have the best piece of steak I can find, once he is ready to eat.

It was early Saturday, Lito, Joe, and myself were spending the day with Daniel. The weather was perfect, so we cruised to the patio with Daniel to take in some much needed sun. He was in good spirits, I put my shades on him and we chilled in the sun. At times, he would tell us he was hot and we would then move him to the shade, then he would say it was cold and we would return to the sun. This was what we did for him to keep him as comfortable as we could, when asked if he wanted to go inside he told us "no I'm cool outside".

It was definitely lifting to see him so engaged and willing to talk, we talked boxing, basketball, soccer and UFC, among other things. For the record, Daniel favors Brazil in the upcoming World Cup, Evans in the next UFC and if it ever happens, Paquio over Maywether. The fact that he can now verbalize all of those things is simply amazing and it made me feel like it is only a matter of time, before his body catches up to his mind.

His mind is definitely sharp, he was tracking our conversations and at times he would chime in on what he thought about the subject matter. He spoke in small phrases and when I shifted the conversation to Spanish he would adjust and speak to me in Spanish, he did the same when we spoke in our most common language (slang). A "Puro pedo" was mixed in, here and there by him too.

Once the sun started creeping away and it got a bit chilly, we returned to his room. He wanted to remain in his wheelchair, so we complied. The topic of our conversation changed a bit as it was getting late and we were going to leave soon. We shared with him how much we miss him, how amazingly far he has come and to keep up the good work. He relayed his frustration with his situation and how he does not feel like he is moving fast enough in the heeling process. This was really tough to hear, my response was; " I wont lie to you, so please believe me when I say that you have definitely come a long way and it is through your hard work and determination that you have come this far".

I realize it may be difficult for him to really understand just how much progress he has made, but I do believe he needs to hear it over and over again.

Our time with him ended as we lay him back in his bed to rest and we had the nurse come in to check up on him, to make sure he was okay. As we parted ways and let him rest for the day, we walked out of the facility in silence, happy to see him doing so well, but also realizing he is now fully aware of his situation.

In Solidarity,

Chuy




Thursday, April 29, 2010

It's been ONE YEAR!

I am taking the liberty to write the anniversary post for Hope for Daniel.

Well, it's been 365 days since Daniel suffered a ruptured brain aneurysm. Needless to say, it's been a year filled with fear, sadness, hope and countless other emotions. And, of course, Survival! We are so thankful and proud of Daniel's determination, strength and will to live. For those that know Daniel, you wouldn't expect any less. He is an inspiration to all of us.

I spent my lunch hour with him today and had a great time talking, listening to music and just hanging out. His speech is getting better, his sentences more clear. He's gained weight and is looking good, as usual. I decided to check if he could feel his toes, legs, and hands. I pressed on his toes and he said he could feel it. I squeezed his shins and he said that he could feel it. I squeezed his fingertip and asked him what I was doing. He responded "squeezing my finger". Then, I scratched that back of his hand and asked him what I was doing...he said "scratching my hand". I scratched his head and he said "that feels good".

It's going to take time to rehabilitate him but at least he can finally communicate with us, laugh with us, be present with us.

We Love You, Daniel!

Tu Prima, Irene

Saturday, April 10, 2010

You are Daniel's Favorite Pastime

Absolutely amazing! Daniel's bravery and perseverance are an inspiration. Daniel and I had a heart to heart on Friday and he says that his favorite pastime is "persons." Seriously, I asked him about books, tv, and such when it occurred to me to ask him which was his favorite way to pass the time. Honestly, I expected him to say music or something of the sort...his answer:

"PERSONS"

When I arrived he was asleep and seemed quite fatigued. He was moved to his wheelchair and we strolled out to the patio where we were joined by Bob and Maria Elena (Cathy's) parents. Daniel chuckled at the story Bob retold about a trip Daniel had taken to Cabo to deliver a Suzuki truck. It took awhile for Daniel to open up but when he gets going he can really share his needs, wants and thinking. On TV he likes sports, his favorite reading material is History Books. He knows the names of letters (I showed him the title of a book I am reading and he named each letter as I pointed to it--just preliminary stuff so I am not sure yet whether he forms letters into words). So you may be thinking that since I teach I am always in that mode when I visit. But to Daniel it's simply an excercise, like excerising his fingers. I showed him his hands and we went to work on moving each of his fingers. He seemed very focused and intent on watching the movements his fingers made with my help. I asked Daniel if this bothered him he said, "no." Then I asked him if he wanted to keep excercising his hand, and he very clearly stated that he wanted to continue.

So, when he responds it is by choice. I have a strong feeling that Daniel is selective about what topics he chooses to use his energy on. And it probably depends on what he is actually able to do or say. He seemingly has access to his full intellectual faculty (I am speaking as a layman here) though articulating his thoughts may take more effort. I shared with him how amazing it was. And he asked me: "What is amazing?" I answered: "That God had spared him his intelligence, the part of his brain where his intellectual thinking takes place." I also told him that this is what defines Daniel, his intelligence, his smartness, and by smartness I mean his ability to accomodate so many varying points of view, to construct knowledge not as objective truth but as a fluid, dynamic and cultural phenomenon all in the name of love for his fellow man.

As others have shared, Daniel has a great sense of humor and likes to keep things upbeat. He is observing and taking it all in (see Jennifers comment about her visit with Daniel in the last post). I noticed, too, that when I moved in gently and spoke softly to him he was very interactive. He told me that he had a headache so we went back to his room to get some tylenol from the nurses. His exact words were "I have a headache." So I touched the front of his head and asked "here?" He responded, "no." I touched the back of his head and asked, "here?" and he answered yes. So we went up to his room to get some tylenol.

I was telling him that I saw the Chivas vs. America (super rivalry) game on Easter Sunday. He became very focused as I became very animated about the game. He literally finishes sentences for me as for example when I explained to him that the yellow team (and he said "America") actually controlled the game...that by all appearances America was dominating because they had more...pause...then Daniel responds: "opportunities." What I meant to say was more shots, as in scoring attempts, but Daniel's word choice is actually better.

At this point, I stopped and said this to Daniel: "Now you ask me a question."
Daniel's reply: "What was the score?"

Chivas won the game with a solitary goal. The score was one to zero. Of course, I was so shocked by Daniel's ability to form this question, that I completely forgot the score...so I stammered some numbers, before finally settling on the 1 to 0, and getting it right. He had asked me a question earlier ("What is amazing?") But what shocked me about this question was that he did it when I prompted him to do so...his grammar is intact...he has the ability to think metacognitively about language...he is thinking about his thinking. Or, as some of you may say, perhaps he just wanted to know the score. All the better, he has the ability to ask questions that are relevant to him.

Then I told him that the difference was the goalkeeper, (el pinchi portero) I told him how the Chivas goallie had blocked 5 legitimate shots, while the Americas goalkeeper choked once the shooter passed the last defender.

By then, John Escobedo's sister Irene showed up and I had to split...so I said to Daniel I'll catch you later man and kissed him on the cheek. His reply: "Nos vemos."

Saturday, March 27, 2010

Daniel Responding More and More

Recently Daniel's Speech therapist called Cathy with some exciting news. Daniel was answering questions with one or two words. This was very validating to Cathy and to all who have spent some good times as of late with Daniel. We are very excited that Daniel is now able to purposefully answer questions and that he is accessing memory files and putting words together. Articulating speech is a very complex process that we all take for granted...we do it automatically.

Family and friends have shared many examples of Daniel responding to stories, jokes and questions. Daniel is communicating. Recently, he translated a word into Spanish for me that I could not remember. The word was "swallow." I was reminding to practice swallowing on his own and to work on it even without being prompted. I began to admonish him in Spanish but I had forgotten how say "tragar" the Spanish word for swallow. I told Daniel that I could not believe that I couldn't remember the word for swallow when he suddenly said it for me. It was quiet and soft, spoken more with a breath than with his voice...but it was audible and unmistakable. He had translated a word from English to Spanish. This word may be there and readily available to him as I am sure my mom and others help him practice his swallowing...but he is definitely accessing the files he has for words...he has memories and memory of words...and he is accessing these files more and more.

My neighbor, who is a software engineer and computer genius (or as he might say "geek"), recently recovered some picture files for me from a disk that I had erased. Since I had downloaded (or is it uploaded?) the pictures onto my computer, I went ahead and deleted them from my camera's memory card so that I could take more pictures. I had already deemed the pictures lost forever. When I told him about it he was not impressed by fatalism. He took my disk, found some recovery software online and was able to recover the pictures from the traces that had been left on the disk.

So, Daniel has these files and he needs our help to excercise his brain power and get access to them. He is recovering all the time! Thank you to all who have gone to visit Daniel. I continue to be inspired by the folks that take time to hang out with my bro. Onward to a new stage in our journey with Daniel.

Monday, February 22, 2010

Laughter is the best medicine!

I'm sure that most of you know that Daniel finally gave us a "sign"! As they say "Laughter is the Best Medicine"!

We were fortunate enough to start off the New Year on a good note. Alfredo, Daniel's brother, discovered that Daniel never lost his sense of humor. Daniel has been smiling and laughing consistently to jokes, videos (from pix messages, youtube, etc.), stories from the past and just about anything that is funny to him. Like today, during my visit I said to him "Gosh Daniel, I wish I had something funny to say so that I can see you laugh, but I'm not very funny". And then I started cracking up, which made him smile so BIG. We were both just sitting there cracking up together. It was so cool!

Daniel continues to receive physical and speech therapy. He's responding very well to the speech therapy. He mouths words and on occasion his voice may come through. He's gaining weight and of course still has that natural tan. He's looking good.

If you have the opportunity to visit Daniel, a journal has been provided to document any activity that you witness. It is crucial to note any and all of Daniel's progress.

Thank you all for your continued support in keeping up with Daniel's blog.

Take care.

Irene Lopez

Friday, February 5, 2010

Daniel's Presence is Strong!

I just read an article in the Los Angeles Times (February 4, 2010) about a biological test that showed brain activity in patients with brain injury. Patients imagined themselves playing tennis or walking in homes, and responded to yes or no questions as measured through brain activity.

I often wonder what Daniel would say if he could speak, or think aloud. I sometimes think aloud for him and I have deep discussions with him regarding this or that. My impression is that Daniel is conscious of his surroundings and is able to concentrate and focus his attention for longer periods! At times his attention seems to come and go however, and this may be due to energy levels or other factors/stimulus. But focus he can! With his eyes, his gaze and his changing expressions...

So the article made me think that although the outward, visible evidence of Daniels "awareness" is subtle, there is more to his brain activity than meets the eye. I am sure that Daniel "remembers" and is able to "imagine" many meaningful people and events in his life. Judging from the stories we hear of Daniel's reaction to his friends his presence is strong.

Please stay tuned for new authors coming your way soon. When we started the blog I was under the impression that we could only have a limited number authors. I've since found out (better late than never) that you could have many more writers posting to the blog. I've invited several others to help out and hopefully get the blog going again...."breathe new life into it" as they say.

Thanks for your support and understanding!

Sunday, December 13, 2009

Tribute to Daniel at RCC Norco




A very special thank you to Daniel's friends, colleagues and especially the students at Riverside Community College for the wonderful fundraising efforts and tribute to Daniel and his family at the annual RCC Norco holiday gathering. We are very grateful for the gifts for Daniel's children and the donation to the Daniel Vega Family Fund.

It was nice to finally have met the good people with whom Daniel collaborated and with whom he cultivated loving and lasting relationships. We all enjoyed the stories and memories of Daniel that were shared. We are so proud of Daniel for the work he has done while at RCC Norco; and it was evident Norco is a place that nurtures the type of values that Daniel lives: community, service and social justice.

Daniel's spirit is strong and we are stronger thanks to your prayers and support.

I was with Daniel today for four hours. Daniel is not able to do much for himself by way of self-care. Though he doesn't speak, he is alert and communicative. As we speak to Daniel or hold his hand or massage his arms, he reciprocates with his attention and efforts at speech.

For those of you who have not visited Daniel, I encourage you to do so...he most certainly benefits from time spent with friends. He is in room 226 at the following address:

Village Square Nursing and Rehabilitation Center
1586 West San Marcos Blvd, San Marcos CA 92069
760/4712986

Please email me at vicmanvega@gmail.com if you need more information or if you would like to arrange a time when we could visit together.






Saturday, November 7, 2009

A Response to sincere 'Comment' by Binuelos:

The comment contained several concerned inquiries
about Daniel and the frustration of not seeing new
updates. Like Binuelos, many who check the blog
everyday, experience dismay and apprehension with
the lack of news. Two weeks without an update
certainly has a way of eroding hopes.
It is our responsibility to support the many who,
because of time and distance, see the blog as their
only contact with Daniel and his family.
Daniel's condition has not regressed in that he has
not experienced the recurring fevers, his weight has
stabilized, the Baclofen pump is functioning properly.
However, his progress with speech therapy and
associated indicators has not displayed any
significant change. Swallowing and possibly using
vocal chords has not been successful as yet.
Daniel is still at Village Square/Kindred in San
Marcos. Cathy, Margarita, and other family members
are very satisfied with the care and treatment offered
by this facility. They have been advised by Daniel's
insurance company that they are evaluating his
condition and need for the level of care offered by
Village Square/Kindred. They will determine if he
will remain here or will be moved, the decision may
come as early as November 14, 2009.
Take care of one another.....
Sal

Monday, October 26, 2009

International wireless communication and
satellite Internet technologies make this post
possible. Daniel's mother Margarita is there
at Kindred in San Marcos, cellular phone in
hand, and I am south of a fishing port on the
shore of the Gulf of California in Baja California,
Mexico. I post this message with the help of
solar panels and batteries powering my laptop
and transmitting it to a tiny satellite up there
somewhere in the backdrop of our galaxy and
the universe.
Margarita reports that the Baclofen is giving
Daniel respite from the posturing, he is definite-
ly more relaxed, rested, and this has facilitated
more progress with physical therapy. He is able to
sit for longer periods. This has enabled family and
friends to take him out to the patio more often for
fresh air and natural light. Daniel's brother, Victor,
assesses Daniel's strength and takes him for
extended tours of the hospital grounds outdoors
on Sundays.
Changes that were made to his nutritional diet
resulted in a one pound weight gain. Small but
significant incremental steps. Once he is able to
swallow puree he will definitely put on more
pounds. The physical therapy will keep him flexible
and prevent atrophy.
As most of you know, Daniel has been a strong
supporter of Barack Obama. Margarita had the
television news on when a sound bite of Pres. Obama
making some remarks seemed to catch Daniel's ear.
It appeared that Daniel did a 'double take' to catch
a glimpse of the image of Obama on the screen!

There are thousands of 'blogs' on the Internet dealing
with every imaginable topic under the sun. Recently I
have been reading blogs posted by families of patients
with brain trauma injuries. They are very informative
and consoling in that these families have traveled this
same journey and want to share their experiences of
fear, anguish, adaptation & adjustment, hope and faith.
Each and every family shared stories of dealing with
mindless insurance companies and the inhumanity of
their profit driven policies. Families are forced to move
loved ones from one facility to another at the dictate of
insurance company claims adjustors. An all too real
story of frustration and seemingly endless battles putting
families under more duress in stressful times.
Many of their loved ones were at various stages of coma
or in their second, third, or fourth year of rehabilitation.
Almost all have shared that the first prognosis given by
neurosurgeons was bleak and without hope.
Understandably, doctors are faced with many
unpredictable factors and avoid giving loved ones false
hopes. Those families took the dire prognosis with
mixed emotions and set out in heroic ways to intervene
and give their loved one a fighting chance to return to
some degree of normality.
There is one recurring theme or stream of advice that I
found in all these blogs, the urgent message from
families and the victims of brain trauma:
'Don't give up!', 'Don't quit!'

It has taken some of the patients a year or two or
more to regain consciousness, it has taken another
year or more to regain speech, it has taken a year or
more to learn to walk, .....all those attributes that we
take for granted loom as multiple marathons for
patient and family alike. One young male patient
relates that over the arduous span of three years
many of his friendships fell by the wayside. This
journey has taken it's toll on everyone, but we shall
continue to stand by Daniel.
Take care of one another..... value health.
Sal

Sunday, October 18, 2009

For those who have visited Daniel prior to Oct. 13,
you observed a medical condition called decorticate
posturing. Simply, this is involuntary muscle
contractions causing a patient to have arms flexed,
or bent inward on the chest, the hands are clenched
into fists, and the legs extended and feet
turned inward. Another part of the posturing is a
condition called 'opisthotonos' in which the head
and back are arched backward.
All of this is related to brain trauma injury, BTI,
stemming from the aneurysm, bleeding, and the
pressure exerted on the brain back on April 28
and 29 th. Seeing Daniel in this condition
motivated many visitors to inquire as to what
could be done.
Fortunately, there is a procedure to alleviate the
cause and produce remarkable effects with patients
suffering from BTI and other afflictions. The
procedure is called ITB for Intrathecal Baclofen Pump.
Again, to simplify this explanation, a small electronic
pump is surgically placed under the skin below the
belt line in the lower abdomen.
Baclofen is a muscle relaxer and an anti-spastic agent.
Baclofen is used to treat muscle symptoms caused by
multiple sclerosis, cerebral palsy, including spasm,
pain, and stiffness.
A catheter, small tube, is inserted through the
intrathecal space surrounding the spinal cord,
entering the lower back and inserted upward.
The pump, a 20 or 40 ml reservoir of Baclofen, is
programmed to release small doses to relax his
muscles. The dose is adjusted with radio telemetry,
an application of physics and the science of radio
waves, wireless communications.

Daniel now has the pump, the results in Daniel's case
are reported to be very positive, he is more relaxed
and alert. This procedure was performed Oct. 13th at
Palomar Hospital.
In addition, the registered dietician has increased
Daniel's caloric intake to help him regain weight.
Daniel's tenacious spirit has cleared another hurdle.

All of us are fortunate to live in an age where afflictions
such as decorticate posturning, cerebral palsy, multiple
sclerosis, muscle spasticity, and other neurological
problems are the subjects of intense medical research.
Credit scientific research for this discovery, the
technology of the ITB - Intrathecal Baclofen Pump,
that has brought relief and eliminated much suffering
for tens of thousands of patients. This new threshold
will support further efforts to re-teach Daniel to
swallow, maintain flexibility for physical therapy,
and facilitate improved speech therapy.

As late as the middle ages, and for centuries leading
up to and beyond the 15th century, people with such
afflictions were deemed to be possessed by demons.
Tragically, many were brought before the Holy
Inquisition of the Catholic faith. The afflicted were
subjected to exorcisms. Unable to drive out alleged
demons, the person was tortured along with
heretics, rebels, witches, homosexuals, and pagans.
The fate of all these people was to be burned publicly
at the stake.
Thankfully, the age of reason has prevailed.
Take care of one another,
Sal

Monday, October 5, 2009

Daniel, my little primito, you've been on the minds
and in the hearts of all of us who love you since
suffering through your terrible ordeal. I know in
my heart that you're only temporarily gone from
your life and that you will be back--
the same guy we all know and love--eventually.

However long it takes, we will all stay strong,

positive, and hopeful in the knowledge that our
prayers will be answered. I wrote the following
poem with the certainty that you, yourself,
will read it and know that you touched the
lives of many! May God continue to bless you
with progress and then bless us with you!

While You Were Sleeping . . .

While you were sleeping for so many weeks
I witnessed the manner in which the Lord speaks.
That wonderful spirit with which we’re endowed
The one that insists that defeat’s not allowed,
Rose up to unite us, encouraging hope.
And gave us the strength that we needed to cope.

It manifested in so many ways,
In kind words and good deeds for so many days.
A testament, Daniel, to the person you are.
In so many lives, you’re a radiant star.
Your trial--I‘m convinced--had a purpose for all.
The Spirit had urged us to answer His call

For human compassion and unbounded love
Such as we’re blessed with from Him up above.
So many hearts overflowed with concern.
For a speedy recov’ry did every heart yearn.
We never let go of our pow’rful conviction
That full recovery’d be your benediction.

And while you were sleeping, some great things transpired.
Your family stepped up in some ways we admired.
Your loving big brother created a blog.
On which our emotions and thoughts we could log.
Your beautiful Cathy--a jewel among wives--
Made sure that this trial wouldn‘t crush your kids‘ lives.

Your ‘lil gal, Olivia, in May was confirmed.
Her faith in the Good Lord above reaffirmed.
Although what has happened has taken its toll
Nayeli still managed to score her first goal.
Danielito and his team--such superb ‘lil jocks--
“Green Gold Champs of ’09, the Temecula Hawks!!!”

Your mom, dad, and siblings stayed strong through this fight.
They knew, in the end, all would turn out just right!
All of this proves that you’re made of great stuff.
And your family, just like you, remained very tough.
You know what they say when the going gets rough!
We witnessed that courage and faith are enough.

This reminded us faith is so crucial in life,
In conquering every occurrence of strife.
When life deals us seemingly unconquerable tests,
His mercy is wherein our victory rests.
And in your resilience and strength we believed
And knew your recovery would be achieved.

We never let go of that vision of you
Involved in those things that you so love to do.
Hiking through mountains and wilderness trails.
Mentoring students with all that entails.
Working on mast’ring the art of jiu-jitsu
Your chosen sport-- that we all know--sure fits you.

Travelin’ to Latin American places
Feeling ONE with those wonderful, brown, noble faces.
Such a wonderful life you enjoyed ‘til the day
We all prayed you wouldn’t be taken away.
When you pulled yourself out of the depths of defeat
We knew that this foe you’d eventually beat.

So none of us doubted that all would end well,
Leaving us with a great story to tell
Of adversity conquered, calamity foiled,
Misfortune torn down and hopelessness spoiled.
We faced them with fortitude powered by God
Upon them we steadfastly, fearlessly trod.

We knew you would make it. We know your resolve.
Despite all the struggles that this would involve.
You’re strong and determined; you value your life.
You treasure your kids and your beautiful wife.
Your family’s important and so’s your career.
There’re so many things you enjoy and hold dear.

So we trusted in you and your strength from the Lord.
Your vigorous fight in all hearts struck a chord.
The odds were against you, the news very bleak.
New challenges rose up each day every week.
You were relentless in fighting this fight.
You overtook hurdles each day and each night.

Rather than choose someone thought of by few,
To make a strong statement, the Good Lord chose you.
I wondered and wondered why this thing occurred
And finally concluded, “He had to be heard!”
He had to remind us that He’s always there,
With His arms around us, there’s naught we can’t bear.

In life when we suffer through many ordeals
He is the One by which misery heals.
With people in whose lives you’ve played a strong role,
The Lord was the One who could fill up the hole.
The Spirit reminded us all of this fact
And knew that you, Daniel, would have that impact.

We’re, all of us, children of God up above.
All blessed with the will to do good for His love.
Together we’re bigger than each one apart.
We’re all of one mind, of one soul, of one heart
And as such there’s nothing that we can’t achieve
Because in the Good Lord above we believe.

By Maria E. Alvarado

Saturday, September 26, 2009

As part of the long term goal of preparing
Daniel for independent living, one immediate
goal is to eliminate the intra-venous drip of
saline for hydration. Another benefit of this
step is that it eliminates an area that is a
source of possible infections. Daniel will
receive liquid hydration through the catheter
to his stomach which is used for nutrient
feeding.
A reminder that there is no longer any
risk in regards to the bout Daniel had with
shingles. Also, the urinary tract infection
has been treated and is history now.
This morning, Daniel had some 'patio
time' with Diana, Alfredo, Margarita, Cristina,
Pat Savas, Tia Chita and Tio Tzal.
Daniel is still holding his own. There have
been numerous reports of a very small sense
of awareness on his part when someone has
mentioned certain topics or events. We're all
searching for a word or phrase or anecdote
that might trigger a cognitive flash or response.
Keep trying. Auditory or verbal stimulus is easy
and inexpensive, and as family and friends, we
we have shared experiences and recognizable
voices...so please keep those positive words
of reminiscence and encouragement flowing.

There are medical studies under way all over
the world addressing this problem. Brain trauma
studies emanate from the medical science fields
of neurology, neurobiology, psychiatry, and
combinations of those fields. Recent develop-
ments in stem cell applications hold many
exciting possibilities. We continue to scan the
research, read, and network with families who
have traveled this road.
It is human nature to measure success with
achieving short term goals. That is good.
Success with long term goals requires great
perseverance. This is admirable.
The struggle for a year or two or more
will find the strongest of us.
...."These are the indispensable ones". Brecht.

Take care of one another......
Sal

Monday, September 21, 2009

Monday, September 21


I was fortunate enough to visit Daniel this weekend and it was apparent, by his discomfort, (extended period of body tension and sweating) that he was having a tough day. While I was there, Cathy got me up to speed on all that was going on with Daniel and mentioned he was having a rough week. From what she shared with me it sounds like there will be a meeting with the medical team assisting Daniel sometime this week to asses his progress.
Before I left I had some alone time with Daniel and I let him know about our fantasy football (this time last year, we were talking trash back and forth about the greatness of each of our teams Los Apaches (me) and Melapelas (him). We finished 2nd and 3rd in the League. This year, I took up his team name and kept my logo, and informed my adversaries I will be handing everyone a beating for two. So far, so good, (2-0) average margin of victory 75 points.
You know, I did feel he was paying attention.
I had a short heart to heart with him after we talked fantasy football, and as I did, his facial expression changed from a fearful look to a more serene expression. I felt him calmer and that allowed me to leave in a better place, sad yes, but also very hopeful that he will pull through.
I would like to take this time to thank all of Daniel's gente in RCC Norco, his co-worker Zina Chacon has informed me of all the awesome people over there, including students, staff, and faculty who have pulled together to raise funds for Daniel, Cathy and the kids. They have been doing raffles, selling food and taking in donations for the purpose of helping Daniel in the only way they can at this point. I know he would be very proud of all of you, and feel honored to have such great gente behind him.
In solidarity,
Chuy

Friday, September 18, 2009

Day 143
Trying to provide an update to keep the
blog current and relevant. Cathy reports
that Daniel experienced a mild seizure three
days ago. No indication of cause or after effects
as of this post. Also, Daniel has had a minor
urinary tract infection, now receiving medication.
Cathy advises taking precautions during visits
this week & next, as Daniel has a mild localized
episode of a form of Chicken pox called shingles.
Indications are that this is stress related. Please
check at nurses station on status prior to visit.

For those of you trying to balance work, school,
managing kids in sports, mortgages/rent, repairs,
commuting, budgets, and other family responsibilities
.....it is by any standard, no easy task. The economy
has exacerbated your struggle. Keep your priorities
in order....easier said than done.
Cathy contends with all of the above and more.
She relies on the great support group of family and
friends, among them, Michelle, Diana, Sara and Sarah,
Irene, and others, too many to mention here.
Their presence is invaluable. A brief word of
appreciation for all that make time to help.
Thank you and keep up the good work.
Take care of one another.....

Friday, September 11, 2009

Today at 5:53 PDT the space shuttle Discovery
had a picture perfect landing at Edwards Air
Force Base in Palmdale, California. Almost 14
days in space connected to the International
Space Station. The astronauts are safe and now
flying to Houston for debriefing before rejoining
their families. Welcome home Jose and Danny.

Wednesday, September 9, 2009

Hey Daniel, Cathy just left and Nando walked in!
Cathy asks that no photos of Daniel be taken or
posted until Daniel can speak to that request.
Jerry Horner's daughter, Michelle and her husband
Spencer Ford visited Daniel. They are from British
Columbia, Canada. They gave Cathy and Daniel three
vials of anointing oils from Jerusalem, Israel. used in
rites and blessings of the Christian faith.
Cathy has scheduled massage and reflexology sessions
for Daniel. They begin next week.
While visiting, Daniel had his daily speech and physical
therapy sessions.
Gave Daniel an update on all World Cup qualifying
matches still going on. The FIFA World Cup will be in
South Africa in 2010. Just sixteen (16) years after the
end of apartheid in 1994! That year marked the end or
46 years of inhumane and brutal 'legal' racial segregation.
Racial segregation in South Africa began in colonial times.
Nelson Mandela was elected president on April 27, 1994,
after 27 years of incarceration as a political prisoner.